"We were grateful for the Orange Envelope assistance from Pinky Swear. The financial assistance helped decrease some of the financial stress of increasing travel costs in taking Taylor to/from her many appointments."
Taylor, or TayTay, as her sisters like to call her, is a typical 4-year-old girl. She loves to be outdoors, play with her dog and try to do everything her big sisters do. She is extremely social and loves meeting new people. She will be quick to let you know that anyone she meets is immediately her new friend.
On January 25, 2019, her mother brought her into the doctor as Taylor woke up multiple times the night before complaining of an ear ache. After completing an abdominal exam her doctor informed Trish that she could feel Taylor’s spleen and liver. He was concerned about this and requested to complete further blood work. After looking at the results, he informed Trish her blood was seriously concerning and she needed go home, pack a bag and head to Fargo. Trish was informed there would be a bed waiting for Taylor.
Our worst fears were confirmed that evening. The oncologist met with Taylor’s parents and broke the news that Taylor had Leukemia. The doctor informed them he wasn’t sure of the type of Leukemia and that she would need to undergo a bone biopsy, lumbar puncture (with first round of chemo treatment) and surgery to have a port placed in the morning. After all the testing was complete, her doctor informed them that Taylor had Acute Lymphocytic Leukemia (ALL). He continued that she has an excellent prognosis, but the first six months would be taxing and difficult.
Taylor is now a few months into her treatment and her courage, strength, and ability to find humor continues to amaze everyone around her. During one conversation concerning her loosing her hair, she looked at her parents and said it’s ok. She said, “when my hair is gone, I will joke with my sister’s hair and laugh,” stating they need to go brush their hair. She also demonstrates amazing strength for all the lumbar punctures, bone marrow biopsy, chemotherapy infusion and multiple trips to the doctor. Early on she was rebellious about taking her meds, but over time has accepted that this is an important part of treatment. She currently is responding well to her treatments.
Taylor’s family had heard about Pinky Swear Foundation through a friend early in her treatment. After Taylor was discharged from the hospital, her parents reached out to the Foundation and were granted an Orange Envelope within two months of being discharged from the hospital.
“We were grateful for the Orange Envelope assistance from Pinky Swear. The financial assistance helped decrease some of the financial stress of increasing travel costs in taking Taylor to/from her many appointments,” said Taylor’s father.